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OWN Trust Charity Non-Uniform Day

On Friday 10th June, Orton Wistow Primary School, Woodston Primary School and Nene Valley Primary School participated in an OWN Trust Charity Non-Uniform Day to raise money for the Cavernoma Alliance UK.

Children in all three of the OWN Trust Schools were invited to wear non-uniform and bring in a donation of £1.

We are delighted to announce that a grand total of £1,118.36 was raised by all three schools combined!

What is Cavernoma?

A cavernoma is made up of abnormal blood vessels and can be found in the brain and/or spinal cord and looks like a raspberry. Cavernomas are also known as cavernous angioma, cavernous haemangioma or cerebral cavernous malformation (CCM). They can measure from a few millimetres to several centimetres. A cavernoma can get bigger, but this engorgement is not cancerous and does not spread to other parts of the body.

Sometimes the cells lining the blood vessels ooze small amounts of blood (inwards) within the cavernoma, or (outwards) into the surrounding tissue. The risk of re-bleeding varies widely and is difficult to predict accurately.

1 person in 600, in the UK, has a brain cavernoma without symptoms (asymptomatic). This equates to roughly 90,000 people – enough to fill Wembley Stadium. A spinal cavernoma is rarer than a brain cavernoma.

Cavernoma also occurs in other areas of the body, such as the spine.

Whilst people with cavernoma have things in common, each person remains unique. This should be considered for each individual who may require both lifelong support and medical attention.

Why was the Cavernoma Alliance UK charity chosen?

The Cavernoma Alliance UK has been chosen as OWN Trust charity this year because cavernoma affects the family of one of Nene Valley’s former pupils and former staff members.

It was the first time that Woodston, Nene Valley, and Orton Wistow Primary School have undertaken a joint charity initiative.  We hope to make it an annual event and raise money for a different charity each year.

For more information about the Cavernoma, Alliance UK, please visit

Photo by Belinda Fewings on Unsplash